Patient and public involvement in COVID-19 research: bridging the gap between theory and practice

An exploration of best practice in patient and public involvement within the National Core Studies Immunity Programme.

This report has been produced by National Core Studies Immunity in association with the British Society for Immunology, with substantial contribution from a group of patients, carers and members of the public. It describes how research teams working as part of National Core Studies Immunity involved patients and the public in their work.

By presenting the experience of both researchers and public contributors, it offers insight into the challenges overcome, the lessons learned and the positive impact of the involvement on the resulting research.

The report also explores what it means to involve patients and the public in research more generally, and how this can be done well, drawing on perspectives of members of the National Core Studies Immunity PPI panel.

The aim of the report is to encourage more research teams to consider involving patients and the public in their work, and to provide practical examples of how this can be done to great effect.

Author list

Mo Hafeez, Tony Kelly, Lynn Laidlaw, Deb Smith, Vivienne Wilkes, Erika Aquino, Amy Edmunds

PPI report title card